As well as ORIGINS long-term core research, there are a number of clinical trials, early interventions and shorter-term research studies that sit within ORIGINS. Known as sub-projects, these studies look at multiple aspects of child and family health and development.
The ORIGINS team is committed to protecting the confidentiality and privacy of data and biological samples. All members of the ORIGINS team are required to sign confidentiality agreements.
Researchers, collaborators and partners will need to apply for approval from Ramsay Health Care WA | SA Human Research Ethics Committee (RHC WA|SA HREC) in order to access the ORIGINS Biobank and Databank. Your data and biological samples will not be sold, however, researchers, collaborators and partners, may be charged a fee to recover some of the costs of collecting the information stored in the ORIGINS Databank and Biobank.
The ORIGINS Project collaborates with a number of overseas researchers and partners. In some cases, these collaborators have unique expertise in analysing and testing samples, expertise that is not available in Australia. As a result, your data or biological samples may be sent overseas for research. All transfers of data or biological samples will be approved by the RHC WA|SA HREC, and where required may also be overseen by an equivalent ethical approval body overseas. When data and/or samples are released to researchers, collaborators or partners, no identifying information will be provided.
The results from research based upon the ORIGINS Databank and Biobank may eventually be published in medical journals or at professional meetings, but you and your child will not be identified in any way. In very rare circumstances, disclosure of your health information will be required by law, for example, as a result of a court order.